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The Patient, Data Protection and Changing Healthcare Models

The Impact of e-Health on Informed Consent, anonymisation and purpose limitation

Book | 1st edition 2021 | Europe | Griet Verhenneman
Description

Healthcare is changing. It is moving to a paperless environment and becoming a team-based, interdisciplinary and patient-centred profession. Modern healthcare models reflect our data-driven economy, and adopt value-driven strategies, evidence-based medicine, new technology, decision support and automated decision-making.
Amidst these changes are the patients, and their right to data protection, privacy and autonomy.
The question arises of how to match phenomena that characterise the predominant ethos in modern healthcare systems, such as e-health and personalised medicine, to patient autonomy and data protection laws. That matching exercise is essential. The successful adoption of ICT in healthcare depends, at least partly, on how the public's concerns about data protection and confidentiality are addressed.

Three backbone principles of European data protection law are considered to be bottlenecks for the implementation of modern healthcare systems: informed consent, anonymisation and purpose limitation. This book assesses the adequacy of these principles and considers them in the context of technological and societal evolutions. A must-read for every professional active in the field of data protection law, health law, policy development or IT-driven innovation.

GRIET VERHENNEMAN is a legal expert on e-health with an academic background. Today Griet is Data Protection Officer at the University Hospitals KU Leuven (UZ Leuven). Previously, she worked as a legal researcher at the Centre for IT and IP Law KU Leuven (CiTiP) and participated in several interdisciplinary projects. Griet continues her collaboration with the Centre as a Research Fellow. In her position of Data Protection Officer, Griet brings data protection into practice. Through her work as an academic, Griet continues to assess, discuss and disseminate about the legal implications of ICT-driven evolutions in the field of health and medicine.

Digital version available on :

  • Strada lex Belgium
  • Strada lex Europa

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Technical info
More Information
Type of product Book
Format Hardback
EAN / ISSN 9781839701245 / 9781839701252
Series name KU Leuven Centre for IT & IP Law Series
Weight 800 g
Status Available
Number of pages xii + 405 p.
Access to exercice No
Publisher Intersentia
Language English
Publication Date Mar 31, 2021
Available on Jurisquare No
Available on Strada Belgique Yes
Available on Strada Europe Yes
Available on Strada Luxembourg No
Chapters

Downloads

  • Table of Contents
    Griet Verhenneman
  • Introduction
    Griet Verhenneman
  • PART 1. CHANGING HEALTHCARE SYSTEMS
  • Chapter I. Societal and Technological Changes
    Griet Verhenneman
  • Chapter II. Personalised Healthcare
    Griet Verhenneman
  • PART 2. THE PATIENT’S RIGHT TO DATA PROTECTION. UNDERSTANDING THE LEGAL CONTEXT
  • Chapter I. Understanding the Legal Roots
    Griet Verhenneman
  • Chapter II. Understanding the Concepts
    Griet Verhenneman
  • Chapter III. Understanding the Subject of Protection
    Griet Verhenneman
  • Interim Conclusions
    Griet Verhenneman
  • PART 3. PROTECTIVE AND EMPOWERING MECHANISMS IN EUROPEAN. AN ASSESSMENT OF INFORMED CONSENT, ANONYMISATION AND PURPOSE LIMITATION
  • Chapter I. Informed Consent, a Means to Empower the Patient?
    Griet Verhenneman
  • Chapter II. The Obligation for Data Minimisation through Anonymisation
    Griet Verhenneman
  • Chapter III. Protecting the Patient through Purpose Limitation
    Griet Verhenneman
  • PART 4. CONCLUDING REMARKS AND RECOMMENDATIONS FOR THE FUTURE
  • Concluding Remarks and Recommendations for the Future
    Griet Verhenneman
  • List of abbreviations
    Griet Verhenneman
  • Bibliography
    Griet Verhenneman